I have been feeling very agitated lately! Kinda wanting to jump out of my skin agitated!! All without any real reason, or so I thought

…however looking at the calendar, I realised that 3 years ago I was diagnosed with breast cancer!  There is not really much I want to say about this, there is no witty blog about how great life is now- because at the moment I feel a bit lost!

Lost because I don’t know where I am going! Lost because I don’t feel quite at home at the moment. Lost because I just don’t really know what I want to do! I don’t know where I want to be! And whilst I have never been one for being particularly decisive in knowing what I want, I feel that breast cancer has robbed me of my choices. Being on a daily, monthly and biannual cocktail of drugs I can’t just pack my bags and leave! I no longer can be carefree and spontaneous, but have to plan ahead, ensure I have medical cover wherever I go, and remember to take my pills!

At the moment I just want to spit out my dummy!! and say this if fucking unfair!!

For a little tbt here is a picture of me bold, a first for me! I have never shared these wiith anyone!!Rhyan

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So super duper excited!!!!

Flights for my father/daughter/marathon trip to Turkey in November have been booked! It’s been 11 years that I visited Turkey properly!! I lived ther for 6 years, and in a way it’s my 2nd home!! We will be flying to Ankara, Cappadocia and Istanbul to visit friends and eat lots of amazing Turkish food!!! I can’t wait!!! Ohhh and run a marathon in 2 continents! Bonus!!

I also booked my flights earlier on this month to fly to Rio de Janeiro in December/January to go and visit my sister there! Having been born in Brazil, she has a Brasilian passport, and after meeting her boyfriend on her travels through Central Amerika, she now works as an English teacher in Rio. Christmas and New Years Eve in Brazil- whoop, whoop!

I love life at the moment!!

For those who ask themselves how I can afford this- it’s all about priorities, I don’t have a morgage, nor do I have kids, nor pets for that matter. I drive a car that is as basic as you can get. My life is about living in the moment, enjoying the now, I want to enjoy what I have now- because no one knows what will happen tomorrow. Today I am well, so I will travel 😄

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And snooz…

I ran my 6 race this year today- the Leeds 10K…I did in 1:04 min, which is 6 minutes faster than last year, and I was wearing a boob!


Hopefully next year I will finally beat the 60 minute mark!

I am of to book my flights for my trip to Turkey now! I am planning on running the Istanbul Marathon in November and I ended up organising a little father daughter trip around it 😃.

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Hip Hip Huray

So, I had my bone scan, I hated having my scan! First of all there is the, we need to access you veins…yay, joy…my veins love being poked and prodded…not! It took them 3 attempts, and ultimately using a baby butterfly to finally find a vein to inject the radioactive dye which is used in the bone scan. Mini Tschernobyl going on in my body- hahaha! Now I just had to wait for 3 hours, for the dye to be taken up by my bones! And finally all I had to do was to lie down and be scanned.

Who wants to lie still for 25 minutes, not me! This all was made even worse when at the end of the scan the radiographer advised me that he would be back in 2 minutes, queue racing heart, sick to my stomach, me going arghhh, I knew it, my breast cancer has spread! The thing is, if you have had a bit experience with this cancer malachy, you know that second opinions can mean danger…

So, I am lying there, having a small panic attack…so as soon as the second radiographer left the room, I insisted on getting up, and tried to question the original radiographer on what had been going on…knowing quite well that they can actually not tell you anything. The thing that he did say to me, as I had already guessed, is that if they think they see anything untoward, a more senior radiographer is asked to double check what they see…the thing that they saw was a spot on my lower spine- which had already been there 2 years ago…so the radiographer was not to worried.

This all happened 10 days ago…and guess what, it was 10 days of waiting! 10 days of my brain going, what if, what if it has spread, can I then still do my trek to China? Should I buy this scuba diving equipment, or is it possible not worth it, as I might not be allowed to dive anymore…

But no news is good news! Today I got a letter from my oncologist…and hip, hip hurray, all is well in cancer land! There is NO EVIDENCE of Bone Metastasis!!! Yay me!!

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3 years…and everything is ok(ish)

3 years ago, I found a lump! 3 years ago, I was told that this something growing in my right boob, was 99% benign…3 years ago, after going back and forth to the Drs, I was eventually told that this “benign lump” wasn’t so benign, but was a 6 cm large Breast Cancer tumor. 3 years ago, I didn’t know if I would still be alive, 3 years later!

3 years!!

Yesterday I went for my yearly follow up; I even got to see my favourite (now that’s an oxymoron) oncologist, but nevertheless it was a rather stressful appointment. I have been having these rather annoying, not constant, but constantly reoccurring back pains. Back pain, you say, that’s nothing to worry about….Now in a perfectly healthy human being, back pain, especially lower back pain is NOTHING to worry about. Unfortunately, having had cancer, I no longer am considered perfectly healthy!

I was huming and awing about whether or not to mention this back pain to my oncologist, as mentioning them would mean that he a) might think I am a hypochondriac, which I personally believe every cancer survivor is, and b) he would probably ensure I would get some kinda test done, which would give me a somewhat definite answer on whether or not it was something sinister to worry about…i.e whether or not the breast cancer had managed to spread to my spine. Doing a scan would give me some kinda certainty, either, that the cancer had not spread, or that it had…and currently I am living in this state of blissful ignorance, and I was not quite sure whether I wanted this changing. However, after being asked whether everything had been alright for the last year, I decided to open Pandora’s box and let my oncologist know that in fact I had been having pains that I was not to sure about.

My oncologist thinks my back pain is more likely caused by all the incessant running I have been up to, since he last saw me, which whilst it is good for my osteopenic bone health, does bare some risks, such as hairline fractures, ec.,nevertheless he felt that it was better to be safe than sorry, and he has ordered a bone scan. Dr P filled out the referral, past me on a slip of paper for the phlebotomist, and advised me that I would be referred for a bonce scan as soon as possible. He is confident that there is nothing! to worry about. My logic tells me that my back pain is unlikely to be linked to Breast Cancer, however, until I know for definite, I will be worrying about what is going on in my spine….The frustrating thing being that I had  actually managed to box away all these worries, fairly, successfully over the last couple of months, and had just started to really enjoy my life!

I said to a friend of mine, this bastard of a disease just likes throwing shit at you, especially when you think you have it all figured out.

So, now I wait for my referral for a bone scan! Yay me!!

I am sure it is nothing, and if it is, I will have to deal with it, there is nothing else to do, but to carry on, one foot after the other!

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Leeds Half Marathon

So I just ran my 4th race of the year, for my challenge of 12 races in 12 months.
I ran the Leeds Half Marathon- which is part of the Run For All Series. Whilst the course was the toughest I have run, Leeds was the most supportive City! If you want to feel loved- run in Leeds! There wasn’t a lot of fancy dress runners- so at first I felt a bit self-conscious but this quickly evaporated when mile after mile people came towards me- wishing me on, cheering me on. Maybe it’s Jane Thomlinson’s legacy. Jane after being diagnosed with late stage Breast cancer, managed to raise over 1.8 million pounds with sporting challenges- that would be difficult for someone who was healthy. I hate the word inspirational- but she has inspired my running challenge.

So thank you to the people of Leeds for all your support!!! I would not have been able to do it without you! Xxx

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Long time no blog

Yes its been a while! Sorry…life caught up with me!

Tonight I watched the #cword a BBC production of the equally funny and sad story of Lisa Lynch, who had documented her journey with breast cancer in her amazing blog I started reading her blog when I was diagnosed with Breast Cancer in 2012, and her blog made me realise that feeling shit when going through chemo is alright!! Feeling pissed of with this situation was alright!! Lisa was the first person who made me realise that I needed to concentrate on living, rather than letting breast cancer rule my life!

Lisa sadly passed away of breast cancer in 2013! She was 33!! I am 34! To say that this does not freak me out would be a lie!!  It has been 2.5 years and I still fret about my breast cancer coming back. I no longer live in constant fear! But I do have to deal with massive anxiety issues, especially when it comes to scan times.

I have found my way of dealing with my fear of recurrence, is to throw myself into some insane running, trekking, fundraising challenge . Instead of obsessing on whether or not something might or might not happen, I rather concentrate on challenging myself, and proving to myself that I can do it. I can run 12 races in 12 months- even though my body at the moment is telling me that maybe I need to slow down. I have another week until the Leeds Half Marathon!!

Not only am running 12 races in 12 months, I am also trecking the Great Wall of China, in Oktober!!

So I would really, really appreciate it, if you could support my fundraising effort, and donate to my everyday hero page, and help me raise some funds for CoppaFeel! to help them continue their work, young people need to be educated about the importance of checking their boobs and the signs and symptoms of breast cancer. Knowing your boobs can save your life!

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“How Cancer gave me Purpose” – My Tedx Talk explained

Originally posted on Jess Weller / My Travelling Life:

Hello wonderful people in my life,

This is the script for my Tedx Talk titled “How Cancer gave me Purpose”.

Each section comes with an image which has it’s own story, hense why I am here to do what I do best – explain and tell you the story.

The video editing was not as good as I would have expected so it is important for me to explain the imagery so that you can better connect with the message of my talk. Enjoy.

The Best

A year and a half ago I was 27 and I was on the adventure of a lifetime.

I was living in London and I had a permanent smile glued to my face.

I was so excited to be starting a new chapter and had recently moved to the UK from New Zealand.

I had just taken my first trip into Europe and several…

View original 2,616 more words


2014 is over and what a year it has been!

It was bonkers!!

Not only did I find my new normal, which involves tons of boob chat, raising money for CoppaFeel! but I also found some of my old normal again, I started travelling loads again, saw loads of my friends and regained my independence!

2014 was the start of me volunteering as a Boobette for CoppaFeel! Being a Boobette means I get to talk to young people at schools, universities and work places, to raise awareness of the signs and symptoms of breast cancer, get them to know the importance of checking their boobs, encourage them to start checking them regurlarly and moreover get them to know what normal feels like. Because if they do not kow what normal feels like than they do not know what not normal feels like. Maybe most importantly we also try to empower them, so that if they feel something is not right, they will go to GPs and have things get checked out. We Boobettes use our stories, so that young people can relate to them. I wish I had a someone like me talk to me! I can’t wait to resume my Boobette duties very soon.

2014 was also the start, and definitely not the end, of me running for CoppaFeel! and raising over 1200 pounds for this amazing charity. I used to run when I was at University…I was actually member of the Durham University Cross Country Club, but after finishing University, I kinda let it slip…because…well, work just got the better of me.
I am not the worlds best runner, and definitely not the fastest, nor is it my favourite sport, but running does give me a sense of control, which cancer had taken away from me. And running in aid of CoppaFeel! means that I can raise awareness of the charity, you definitely get noticed when running as a giant boob, and moreover, I can help to raise vital funds for this brilliant charity.
Yes, so running, its going to continue this year, this rear I am going to be running 12 races in 12 months to raise at least 5000 pounds, to help CoppaFeel! spread their message of “knowing your boobs could save your life!”. Rhyan is racing for racks! Please follow my story over on tumblr

Back to 2014…

In 2014 I also got to go to a Festival, no 2 Festivals…both times boob related. I am 33 and I love festivals…I love the freedom of just being you at a festival! I can be my little exited Rhyan that runs around like a crazy 16 year old.
The first festival I went to was Festifeel, CoppaFeel!’s own festival which is curated by Fearn Cotton, so you get to see loads of cool, up and coming bands. It was a lovely day, sunny- which is a treat in the UK, I managed to get to park my car for free right in front of the venue- yay!!! There was loads of lovely CoppaFeel! people, a lot of fellow Boobettes- its always nice to meet up with them and have a little chat. Festifeel is amazeballs, and 2014 Rizzle Kicks headlined it, and I soo am going to see them again…!!!
The other festival I went to was Leeds Festival. I went there together with CoppaFeel! who every year tour the UK festival scene as part of their boob tour with their amazing Boob Cube. The idea behind this is to talk to as many festival goers as possible, making them aware of the sign and symptoms of breast cancer and signing them up to the brilliant “boob checking” reminder text service. The campaign in 2014 was all about #whatnormalfeelslike. We were asking young people to describe their boobs, how they felt like, rather than what size they were. Ultimately if you are not comfortable with your boobs, if you do not feel what they normally feel like, how are you going to know what not normal feel likes… FYI My boobs are wonky, new boob is like a rugby ball and my old boob, well that’s peachy…so go one check yours and tell your boyfriend, girlfriend, sister, mom what they feel like! Leeds Festival was a blast, the weather was crap- how can it be just as warm in August as it was in early December! but the lovely CoppaFeel! crowed meant that this really didn’t mater, and hey wellies and winter coat is all you need when watching “The Arctic Monkeys”… I really hope I get to do this again in 2015.

So 2014 was also about me re-establishing my old normal! I had lost my identity throughout this cancer journey…I no longer knew who I really was, apart from a breast cancer patient…and my 3 month stay in the Psychiatric hospital made me realise that this…

I started to travel again! I love traveling…I live to travel! I travelled in England, Scottland, Germany, Egypt and Turkey :-). Yayyy…I got to go to places where I had never been, including Fort William in Scottland- did I mention I love!! Scotland. I think its the wild open landscapes that you have there, all fairly untouched. Whilst I am a city girl…I really do like to just get away from everything and just let my soul wander…as you say in German…”Die Seele baumeln lassen”. I also went back to Egypt…I had not been to Egypt for 4 years. In 2010 I had left Egypt very abruptly after splitting up with a nasty piece of crap, who had beaten me up! So, as most people might understand, I kinda did not really wanna go back there- trauma!!! However, somehow I mentioned to one of my bestest friends that I was thinking of going there for a holiday, and he and one of his mates ended up booking a holiday to go diving there…and as I always wanted learn to dive. So of to Egypt I went, got my diving certificate, and after getting back to the UK, I booked my next trip to Egypt with a stop over in Istanbul! Going to Istanbul for a day has inspired me to go back to Turkey this year. My plan is to travel from Ankara, via Cappadocia to Daca…

Friends, I saw my friends, loads of them…I hardly spent any time in my flat in Leeds (maybe I should just leave a bag of clothes at one of my collegues, pay her 100 quid a month and save the rest…but that wont work). Everyone needs to spend time with their friends, it is just a shame that mine live all over the place! Whilst most people have a set group of friends that live close by, I have to drive for at least 4 hours to see my best friends, or jump into a plane. I only have one very close friend here in Leeds! One thing I have realised with this breast cancer malachy, is that I find it hard to relate to my friends who have had kids…I wont have kids in the foreseeable future…maybe never…to say I don’t mind is wrong…but I have accepted it. I cannot talk to my friends about kiddy, baby related stuff…but I think it would be nice to just talk to my friends about other things… Just as I had to find my identity again after breast cancer, some of my friends might need to find their identity after having had kids…

Independence, I definitely regained my independence…but more than that, I have learnt to like my own company. Prior to breast cancer I really hated being on my own, and throughout my chemotherapy I literally could not be in a room by myself, because I would start running up the wall! Now, I don’t mind spending time by myself…because this means I can do what I want!

So all in all 2014 was a great year!!! Now lets hope 2015 is just as good! It started with a bang- and not a good one, one involving lots of metal and me having to deal with insurance companies…but lets not dwell on being pissed of…and concentrate on living!

A happy 2015!!

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Voices of Metastatic Breast Cancer

#voicesofMBC - A social media campaign to be seen and heard



Leading #TeamPositive from diagnosis to all clear


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